Improving Treatment Adherence: The Importance of Science Of Patients’ Engagement

  Why Is Treatment Adherence Important?  Failing to adhere correctly to a therapy can have serious consequences, both individually and for the entire healthcare system. For people with multiple sclerosis, not following treatment can lead to worsening symptoms, an increase in relapses (reoccurrence of new or old symptoms), and in some cases, progression of the […]

Validation of the BEAMER Model – factors influencing adherence behaviour 

The BEAMER project is an Innovation Medicine Initiative (IMI) funded public-private partnership that focuses on understanding factors that impact a patient’s adherence across various disease areas. Our primary objective is to develop a model that identifies patient needs and preferences, which in turn enables patient-specific support for improving treatment adherence. The BEAMER project’s proposed model […]

BEAMER to attend the 2025 World Evidence, Pricing, and Access Congress

We are excited to announce that BEAMER will be attending the Amsterdam 2025 World Evidence, Pricing, and Access (EPA) Congress, Europe’s largest congress dedicated to market access, pricing, and evidence. From 5-6 March 2025, the event will feature over 300 speakers, 8 tracks, and 1500+ attendees from the pharma, biotech, and Payers/HTA sectors. We are […]

Understanding Duchenne: The Role of World Duchenne Organization in BEAMER 

  (From left to right: Suzie-Ann Bakker and Dimitrios Athanasiou, World Duchenne Organization)   The role of patient organizations in international research projects is as unique as it is important. Patient organizations serve as the collective voice of people living with this specific condition. In research projects, they ensure that outputs are designed to address the […]

BEAMER Project Assembly in Antwerp: A Productive Endeavor

Led by the project and coordination team, the BEAMER project assembly in Antwerp on March 12th and 13th proved to be a productive event. The teams spearheaded discussions on the mission statement and vision of BEAMER, setting the tone for the collaborative efforts ahead. Throughout the assembly, updates from various work packages were provided, including […]

BEAMER Project to Speak at Health Procurement Thematic Innovation Ecosystem Event

We’re excited to announce that the BEAMER Project will be speaking at a Health Procurement Thematic Innovation Ecosystem Event attended by Beatriz Merino from UPM and Ana Roca-Umbert from PredictBy. They will share their expertise and experiences from BEAMER about the model and treatment adherence. Their insights promise to contribute to the diverse perspectives offered […]

Unlocking the Future of Clinical Trials: The Critical Role of Patient Adherence

In an exploration of the critical facet of patient adherence in clinical trials, Aad R. Liefveld from Link2Trials, a partner of the BEAMER project, sheds light on the profound impact adherence has on global health, pharmaceutical decision-making, and the successful outcomes of clinical trials. In this two-part series of articles, Aad speaks about available innovative […]

Understanding Human Behavior To Help Improve Patient Adherence

Healthcare professional. Image by Unsplash

BEAMER is delighted to announce that its project lead Claire Everitt, the Device Design and Engineering Team Leader in R&D at Pfizer and Aad R. Liefveld, a project member, have authored an article titled ‘Understanding Human Behavior To Help Improve Patient Adherence‘ published in Clinical Leader. Unveiling the Urgent Context: This article has been published […]

BEAMER Gains Positive Reception within the Dutch CRO Community

Image taken by Link2Trials

Recently, Sjaak Bloem and I had the privilege of presenting the BEAMER project to the Dutch CRO community during the annual Association of Contract Research Organization Netherlands (ACRON) symposium. The event, overseen by Prof. Dr. Carmen Dirksen of Maastricht University, centered around patient participation in clinical studies—a focal point that aligns closely with BEAMER’s overarching […]

Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”