Akershus University Hospital and the University of Oslo

BEAMER
Akershus University Hospital and the University of Oslo
University of Oslo

Health conditions and target population approached by AHUS & UiO:

More than 3000 adults examined for suspected diagnosed with Obstructive Sleep Apnea and giving consent to participate in future research are available for inclusion. The majority of potential participants have received a treatment recommendation for using positive airway pressure (2 separate pilot studies). Studies have shown a strong association between Obstructive Sleep Apnea and cardiovascular disease including hypertension, atrial fibrillation, heart failure and pulmonary hypertension. Positive Airway Pressure therapy has been shown to significantly reduce cardiovascular risk, but adherence to the treatment is as low as 50-70%. Both mechanical and psychological factors have been related to treatment non-adherence. Experienced adherence challenges are leaks from masks when using Positive Airway Pressure therapy.

The University of Oslo (UiO) was founded in 1811 as the first university in Norway. Today it is the country’s largest public institution of research and higher education with 27 000 students and 7500 employees. UiO is the highest ranked institution of education and research in Norway - and have a strong track record of pioneering research and scientific discovery. Established in 1814, the Faculty of Medicine at the University of Oslo is the country's oldest and largest faculty of medicine responsibility for providing high standards of research and research-based education, hosting 9 master programs in addition to educating approx. one third of all medical students in Norway. The Faculty has an extensive EU project portfolio with more than 50 awarded projects and 7 ERC awardees.

Brief Partner Profile 700-bed primary teaching hospital for more than 560.000 persons. AHUS is one of the pioneers in Electronic Patient Records; and has participated in eHealth R&D activities as well as standardization, both nationally and internationally. Currently, AHUS is focusing on patient and consumer involvement, cross-level communication and technology deployment, on Artificial intelligence in Clinical work, on patient privacy and information security, and on standards for health informatics. In BEAMER, a special emphasis will be given to Adherence related to heart failure with preserved ejection fraction (HFpEF) and severe sleep apnoea.

Akershus University Hospital and the University of Oslo

Health conditions and target population approached by AHUS & UiO:

More than 3000 adults examined for suspected diagnosed with Obstructive Sleep Apnea and giving consent to participate in future research are available for inclusion. The majority of potential participants have received a treatment recommendation for using positive airway pressure (2 separate pilot studies). Studies have shown a strong association between Obstructive Sleep Apnea and cardiovascular disease including hypertension, atrial fibrillation, heart failure and pulmonary hypertension. Positive Airway Pressure therapy has been shown to significantly reduce cardiovascular risk, but adherence to the treatment is as low as 50-70%. Both mechanical and psychological factors have been related to treatment non-adherence. Experienced adherence challenges are leaks from masks when using Positive Airway Pressure therapy.

The University of Oslo (UiO) was founded in 1811 as the first university in Norway. Today it is the country’s largest public institution of research and higher education with 27 000 students and 7500 employees. UiO is the highest ranked institution of education and research in Norway - and have a strong track record of pioneering research and scientific discovery. Established in 1814, the Faculty of Medicine at the University of Oslo is the country's oldest and largest faculty of medicine responsibility for providing high standards of research and research-based education, hosting 9 master programs in addition to educating approx. one third of all medical students in Norway. The Faculty has an extensive EU project portfolio with more than 50 awarded projects and 7 ERC awardees.

Brief Partner Profile 700-bed primary teaching hospital for more than 560.000 persons. AHUS is one of the pioneers in Electronic Patient Records; and has participated in eHealth R&D activities as well as standardization, both nationally and internationally. Currently, AHUS is focusing on patient and consumer involvement, cross-level communication and technology deployment, on Artificial intelligence in Clinical work, on patient privacy and information security, and on standards for health informatics. In BEAMER, a special emphasis will be given to Adherence related to heart failure with preserved ejection fraction (HFpEF) and severe sleep apnoea.

Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

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Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”

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