Foundation for Biomedical Research of University Pediatric Hospital Niño Jesús of Madrid

Health conditions and target population approached by FHUNJ:

The paediatric hospital Niño Jesùs has patients from birth to 18 years old. Although, it is possible to let most children from the age of 10 years fill in the questionnaire in order to homogenise with the age groups usually found in the literature, 12 years would be the cut-off point. Below that age, the questionnaires will be filled in by parents/guardians, because they are the ones responsible for administering the treatment. Adherence problems are also common at that age. Having tools to measure it would be of utmost importance for paediatricians. The situation of nonparental families.

We envisage that the biggest number of participants in the study will come from paediatric pulmonary and allergies departments of the hospital and from some paediatricians randomly contacted from the whole of Madrid region, rural and urban zones. We count also to be able to recruit some hundreds of patients thanks to the involvement of the outpatient's pharmacy, the gastro-enterology, and the endocrinology departments. Oncology, psychiatry, neurology and other departments of the hospital will be asked to recruit patients for the study as well.

The Foundation for Biomedical Research at the Niño Jesús University Children’s Hospital is a world leader in research whose purpose is to generate new knowledge to develop new ways of preventing, diagnosing and treating the different diseases that affect the paediatric population, giving rise to a space shared with society, companies and universities that projects and transfers the results achieved at a national and international level.

Foundation for Biomedical Research of University Pediatric Hospital Niño Jesús of Madrid

Health conditions and target population approached by FHUNJ:

The paediatric hospital Niño Jesùs has patients from birth to 18 years old. Although, it is possible to let most children from the age of 10 years fill in the questionnaire in order to homogenise with the age groups usually found in the literature, 12 years would be the cut-off point. Below that age, the questionnaires will be filled in by parents/guardians, because they are the ones responsible for administering the treatment. Adherence problems are also common at that age. Having tools to measure it would be of utmost importance for paediatricians. The situation of nonparental families.

We envisage that the biggest number of participants in the study will come from paediatric pulmonary and allergies departments of the hospital and from some paediatricians randomly contacted from the whole of Madrid region, rural and urban zones. We count also to be able to recruit some hundreds of patients thanks to the involvement of the outpatient's pharmacy, the gastro-enterology, and the endocrinology departments. Oncology, psychiatry, neurology and other departments of the hospital will be asked to recruit patients for the study as well.

The Foundation for Biomedical Research at the Niño Jesús University Children’s Hospital is a world leader in research whose purpose is to generate new knowledge to develop new ways of preventing, diagnosing and treating the different diseases that affect the paediatric population, giving rise to a space shared with society, companies and universities that projects and transfers the results achieved at a national and international level.

Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”