Italian Multiple Sclerosis Foundation

Health conditions and target population approached by FISM:

Adults diagnosed with Multiple Sclerosis that uses disease-modifying drugs, therefore mainly in the relapsing remitting disease course and a small percentage in the progressive disease course Experienced adherence challenges are related to following disease modifying drugs assumption, that could be taken at home or injections at clinic due to potential side effects or other related issues. Moreover, all subjects are treated with rehabilitation individual programme that requires high motivation and organisation (i.e. a subject has to move from home to the outpatient service two/three times a week).

The Italian Multiple Sclerosis Society (AISM), through its Foundation (FISM), is the leading funding agency of research in Multiple Sclerosis (MS) field in Italy and the third funding agency worldwide (after US and Canada MS Societies) to better understand the causes of the disease, to improve the quality of life of people with and affected by MS (PwMS) and to provide better treatments toward a definitive cure for a MS. The overall goal of the MS Society is to make the bridge walkable between PwMS and health care government agencies and thus to support people with MS in making decisions for their treatments and quality of life. Italian MS Society advocates and campaigns to raise public awareness and understanding of MS by uniting the national MS movement though campaigning and advocate for the interests and rights of people affected by MS, in order to improve their quality of life. Information and communication activities of the Italian MS Society aim to empower PwMS by providing information which meets the needs of people affected by MS.

Italian Multiple Sclerosis Foundation

Health conditions and target population approached by FISM:

Adults diagnosed with Multiple Sclerosis that uses disease-modifying drugs, therefore mainly in the relapsing remitting disease course and a small percentage in the progressive disease course Experienced adherence challenges are related to following disease modifying drugs assumption, that could be taken at home or injections at clinic due to potential side effects or other related issues. Moreover, all subjects are treated with rehabilitation individual programme that requires high motivation and organisation (i.e. a subject has to move from home to the outpatient service two/three times a week).

The Italian Multiple Sclerosis Society (AISM), through its Foundation (FISM), is the leading funding agency of research in Multiple Sclerosis (MS) field in Italy and the third funding agency worldwide (after US and Canada MS Societies) to better understand the causes of the disease, to improve the quality of life of people with and affected by MS (PwMS) and to provide better treatments toward a definitive cure for a MS. The overall goal of the MS Society is to make the bridge walkable between PwMS and health care government agencies and thus to support people with MS in making decisions for their treatments and quality of life. Italian MS Society advocates and campaigns to raise public awareness and understanding of MS by uniting the national MS movement though campaigning and advocate for the interests and rights of people affected by MS, in order to improve their quality of life. Information and communication activities of the Italian MS Society aim to empower PwMS by providing information which meets the needs of people affected by MS.

Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”