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Webinar Recording #1: How patients struggle with treatment? 

How patients struggle with treatment?  The cost of non-adherence and why it matters.

Watch the recording of first webinar in the new webinar series about the different challenges around treatment adherence and the adoption of B-COMPASS across the healthcare systems.

Objectives of the webinar: 

  • To highlight the importance of treatment adherence and its impact on patient outcomes, healthcare costs, and system efficiency 
  • To discuss key challenges in adherence from different stakeholder perspectives
  • To introduce the B-COMPASS briefly, setting the stage for the next webinar on its specific benefits and applications 

For this session, we were happy to welcome speakers from outside the BEAMER project partnership and representing different sectors (private, patient advocacy, medical research) sharing insights on why patients often struggle with treatment adherence, the impacts of this challenge, and strategies to effectively address it. This was a unique opportunity to explore new perspectives and approaches to improving patient outcomes.

  • Lina Eliasson, Sprout Health Solutions, UK

As Founding Partner at Sprout Health Solutions Ltd, I specialize in understanding, measuring and improving treatment adherence and other behaviours that impact health. I also have experience in identification and validation of clinical outcomes assessments (COAs) and in patient preference studies. My background spans both academic research and the commercial world. Following completion of my PhD on adherence to oral oncology drugs from UCL School of Pharmacy, I worked as a post-doc researcher at Imperial College London’s haematology clinical trials unit. I then joined a behaviour change agency, where I oversaw the development, implementation and evaluation of patient and caregiver support programmes delivered by multi-disciplinary healthcare teams, which I trained and supervised. Before founding Sprout with Dr Christina Jackson in 2017, I led the European COA team for one of the world’s largest clinical research organisations. Throughout my career, I’ve collaborated with numerous leading pharmaceutical and biotech companies globally across a wide range of disease categories.

Access the presentation slides from Lina Eliasson 

  • Stefan Gijssels, Patient Expert Center, Belgium

Stefan is the Chair of the Patient Expert Center (PEC) in Belgium since January 2021. The Patient Expert Center is an organisation that trains members of patient organisations to become Patient Experts in their disease area. He is also member of the board of Alzheimer Liga Vlaanderen and member of ProLong, the lung cancer association. He is the author of the book: “De Stem van de Patiënt” (the voice of the patient), published by Lannoo Campus in 2025. The book advocates for a better and formal integration of the patient perspective in medical practice and health policy. In 2018, Stefan Gijssels co-founded and led Digestive Cancers Europe, as the continuation of EuropaColon, moving the organisation from the UK to Belgium, expanding its scope, hiring new staff and significantly increasing the organisation’s activities and funding. Stefan is a survivor of a metastatic colorectal cancer. 

Access the presentation slides from Stefan Gijssels

  • Maria Rubio–Valera, Sant Joan de Déu Hospital, Spain

María Rubio-Valera, PI of the PRISMA Research Group at the Parc Sanitari Sant Joan de Déu, is a graduate (2008) and a PhD (2012) in Pharmacy from the University of Barcelona. Since 2017, she jointly leads Evaluation of Health Technologies in Primary Care and Mental Health (PRISMA) group. Between 2013 and 2019, she was an associate professor at the University of Barcelona and has given master classes at the University of Barcelona, the Pompeu Fabra University and the Autonomous University of Barcelona. Her research focuses on the design and evaluation of health interventions using mixed methods. Specifically, it studies the magnitude and impact of health-related behaviors, such as adherence and health promotion activities, designing targeted interventions adapted to the patient’s context to improve these behaviors and evaluating their effectiveness and cost-effectiveness. In this line of work, in September 2020, she received a Starting Grant from the European Research Council (ERC), an entity that promotes the careers of young European researchers. This is the work “IMA-cRCT – Effectiveness and cost-effectiveness of the Initial Medication Adherence intervention: a randomised controlled trial and economic model” 

Access the presentation slides from Maria Rubio-Valera

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Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

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Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”

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