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Webinar Recording #2 – Treatment adherence and its societal impact: how do we move forward?

Treatment adherence and its societal impact: how do we move forward?

Watch the recording of the second webinar in the new webinar series about the societal impact of treatment (non)-adherence and the adoption of B-COMPASS across the healthcare systems.

Studies estimate that approximately 50% of medications are not taken according to the prescribed instructions, often because people do not fully understand how or why a treatment works.

Treatment adherence remains one of the most persistent challenges in healthcare, influencing not only individual outcomes but also several aspects of society.

The BEAMER project is developing a model, B-COMPASS, a questionnaire to help doctors tailor information to each patient to improve adherence. This approach aims to make treatments more effective, enhance health outcomes, and reduce healthcare costs across Europe.

The repercussions of non-adherence span far beyond the clinical setting: it affects healthcare costs, may compromise treatment outcomes and increase morbidity, and places an added strain on families and caregivers. What are the societal impacts of treatment adherence, and how can we move forward?

Mark Duman, MD Healthcare Consultants, UK

Mark Duman is a clinician, management consultant, and patient advocate who works with organisations to improve their products and services, primarily by unlocking the full potential of patient and public engagement. Working in the NHS, The King’s Fund, the BBC, and as a Founder of the Patient Information Forum, Mark endeavours to make healthcare more person-centric. He works with organisations such as AstraZeneca, Diabetes UK, Google Health, Innovate UK, JnJ, Macmillan Cancer Support, Microsoft, Pfizer, Novartis & Siemens Healthineers to harness digital health, improve market access and embed patient engagement in health care products & services. Mark holds a number of Non-Executive Director and Advisory roles.

Access the presentation slides from Mark Dunam

Peter Kapitein, Inspire2Live, the Netherlands

As a patient advocate and CEO of Inspire2Live, Peter Kapitein has made it his mission in life to connect patients, researchers and clinicians to further research, treatment and care, both in the Netherlands and internationally. He does this by running events, lobbying a wide range of organisations, giving lectures and talks, and writing blogs, articles and books. He also co-founded the Alpe d’HuZes foundation, which has raised over EUR 150 million for the fight against cancer via its annual cycling event on Mount Alpe d’Huez. Since 2022, he has been a member of IHI’s Science and Innovation Panel (SIP). The SIP brings together diverse health and research stakeholders and is tasked with providing IHI’s Governing Board with science-based advice on a range of matters.

Michel van Agthoven, J&J, the Netherlands

Michel van Agthoven started his career in 1998 as a scientific researcher in Health Technology Assessment at the Erasmus University and defended his PhD in 2004. In 2005 he started working for Janssen, where he held many functions in the Netherlands, Benelux and in international roles. He worked for Gilead Sciences for 2 years prior to returning to Janssen as a management board member in 2016. As of 2022, Michel is Campus Lead for the Dutch Johnson & Johnson companies. He is also chairman of the AmCham Healthcare Committee, and holds memberships of the advisory board of the pharmaceutical association, the board of the Leiden BioScience Park and the economic board South-Holland.

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Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”