Category: Blog & Webinars

Improving Treatment Adherence: The Importance of Science Of Patients’ Engagement

  Why Is Treatment Adherence Important?  Failing to adhere correctly to a therapy can have serious consequences, both individually and for the entire healthcare system. For people with multiple sclerosis, not following treatment can lead to worsening symptoms, an increase in relapses (reoccurrence of new or old symptoms), and in some cases, progression of the […]

Validation of the BEAMER Model – factors influencing adherence behaviour 

The BEAMER project is an Innovation Medicine Initiative (IMI) funded public-private partnership that focuses on understanding factors that impact a patient’s adherence across various disease areas. Our primary objective is to develop a model that identifies patient needs and preferences, which in turn enables patient-specific support for improving treatment adherence. The BEAMER project’s proposed model […]

Understanding Duchenne: The Role of World Duchenne Organization in BEAMER 

  (From left to right: Suzie-Ann Bakker and Dimitrios Athanasiou, World Duchenne Organization)   The role of patient organizations in international research projects is as unique as it is important. Patient organizations serve as the collective voice of people living with this specific condition. In research projects, they ensure that outputs are designed to address the […]

An analysis of medication adherence through Electronic Health Records (EHR) data

As researchers in Pharmacoepidemiology and Pharmacovigilance focused on studying the use, adherence, effectiveness and safety of drugs in different conditions and populations in Primary Care using data proceeding from the Electronic Health Records (EHR), understanding and managing such massive data poses a significant challenge for our research group. We have access to a large amount […]

“Lighting The Way” Blog Series #6: Adherence and Effiency

Medicaton

Each month, we convene several partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments.   You will learn more about who they are and why they care so much about improving adherence across Europe. You’ll also […]

“Lighting The Way” Blog Series #5: Adherence and Equity

Each month, we convene several partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments.   You will learn more about who they are and why they care so much about improving adherence across Europe. You’ll also […]

“Lighting The Way” Blog Series #4: Adherence and Effectiveness

Photo by Towfiqu barbhuiya on Unsplash

Each month, we convene several partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments.   You will learn more about who they are and why they care so much about improving adherence across Europe. You’ll also […]

“Lighting The Way” Blog Series #3: Adherence and Timeliness

Each month, we convene several partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments.   You will learn more about who they are and why they care so much about improving adherence across Europe. You’ll also […]

“Lighting The Way” Blog Series #2: Adherence and Patient-Centredness

Each month, we gather a few partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency, and equity—related to treatment adherence. Today, we’ll speak with patient organisation APDP Diabetes Portugal, full-service recruitment and adherence company Link2Trials, and non-profit organisation UDG Alliance.   You’ll learn more about […]

“Lighting The Way” Blog Series #1: Adherence and Safety

Each month, we gather a few partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments. Today, we’ll speak with representatives from patient organisation World Duchenne Organisation, biopharmaceutical company Pfizer and research institution IDIAPJGol. You’ll learn more […]

Supported by a grant from IMI, the project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 101034369. This joint undertaking receives support from the European Union’s Horizon 2020 research and innovation programme, the European Federation of Pharmaceutical Industries and Associations [EFPIA] and Link2Trials. The total budget is 11.9 M€ for a project duration of 60 months.

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Information on this website reflects project owner’s views and neither IMI nor the European Union, EFPIA, or any Associated Partners are responsible for any use that may be made of the information contained therein.

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Healthcare Professional

The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)

It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.

These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.

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Patient Organisation

Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.

The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.

The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.

“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”

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