ECHAlliance values the privacy of those who provide Personal Data to it. This privacy policy ( the “Policy”) describes how and why we collect, store and use Personal Data. This Policy is an important document and we recommend that you read it carefully.
In this Policy we use the terms:
“Personal Data” has the meaning set out in EU Regulation 2016/679. This includes any information about an individual from which that person can be identified;
“ECHAlliance” means Connected Health Alliance CIC.
Under certain circumstances you have the following rights:
We aim to be transparent about why and how we collect and process Personal Data. For further information on our processing activities please review the relevant section below:
Collection
ECHAlliance process Personal Data about contacts using a client relationship management tool (“Database”). Personal Data is collected and added to the Database by ECHAlliance staff, and can includes: name, email address, job title, telephone number, area of business, job role, jurisdiction, language, seniority and other business contact information. The Personal Data may also be collected by virtue of us providing our services to you as a member or at a networking event. In addition Personal Data may also be collected via the ECHAlliance website
Use
Retention
Personal Data is retained on the Database for as long as it is necessary for the purposes set out above (being the length of the business relationship). If a business contact requests to be forgotten their contact details will be deleted from the Database. If a business contact opts out of receiving marketing materials their details will still be retained (as we will need to retain a record of their request not to be contacted) but marketing materials will no longer be sent.
Collection
We do not routinely monitor IP addresses for visitors to our website. Personal Data will be collected if you sign up to attend any of our events and/or to receive our marketing literature.
Use
We have in place appropriate technical and organisational security measures to protect your Personal Data against unauthorised or unlawful use, and against accidental loss, damage or destruction.
We put in place strict confidentiality agreements (including data protection obligations) with our third party service providers.
The ECHAlliance website, www.echalliance.com, may link to other, unaffiliated third party websites. Please note that ECHAlliance is not, and cannot, control or be responsible for the content or privacy and confidentiality practices of any third party websites. You must always carefully review the privacy and confidentiality policy of any third party website that you may visit in order to understand how the operators of that website may collect, store and use your Personal Data.
This Policy was last updated in June 2022.Please check back regularly to keep informed of updates to this Policy.
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A cookie can be classified by its lifespan and the domain to which it belongs. By lifespan, a cookie is either a:
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ECHAlliance is the data controller and if you have any questions about this Privacy Policy please contact us at: privacy@echalliance.com
While we hope that you will not need to, if you want to complain about our use of Personal Data please send an email detailing your complaint to the Privacy Officer: privacy@echalliance.com
Supported by a grant from IMI, the project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 101034369. This joint undertaking receives support from the European Union’s Horizon 2020 research and innovation programme, the European Federation of Pharmaceutical Industries and Associations [EFPIA] and Link2Trials. The total budget is 11.9 M€ for a project duration of 60 months.
Disclaimer:
Information on this website reflects project owner’s views and neither IMI nor the European Union, EFPIA, or any Associated Partners are responsible for any use that may be made of the information contained therein.
The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)
It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.
These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.
Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.
The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.
The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.
“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”