Each month, we convene several partner organisations from the BEAMER project to discuss one of the six dimensions of quality care—safety, effectiveness, patient-centredness, timeliness, efficiency and equity—as it relates to adherence to treatments.
You will learn more about who they are and why they care so much about improving adherence across Europe. You’ll also gain insights about how their specific role within the BEAMER project can help prove critical to achieving the quality care that comes when we work together towards better health outcomes.
Adherence to treatment, also known as medication adherence or compliance, refers to the extent to which a patient follows the prescribed or recommended healthcare regimen provided by their healthcare provider. This regimen can include taking medications as prescribed, following a specific diet, undergoing medical procedures, participating in physical therapy, or making lifestyle changes.
I am Beatriz Merino, a biomedical engineer with a PhD, and I work at the Life Supporting Technologies research group at the Universidad Politécnica de Madrid.
My name is Ana Roca-Umbert, and I’m a senior research consultant at PredictBy. PredictBy is a research and consulting firm focused on social, behavioural, and data science. We identify and capture societal challenges related to health, the environment, and digital transformation, turning scientific methods into actionable knowledge.
For me, quality care means a harmonious blend of empathy, evidence-based practice, and patient-centred approaches, ensuring that each person receives the most appropriate treatment tailored to their unique needs. It encompasses not only medical intervention but the entire care experience, fostering trust and understanding between healthcare professionals and patients to enable shared decisions—a 360-degree approach.
For me, quality care means providing the best possible healthcare to patients to ensure their overall well-being. It puts the patient at the centre of the system, where their health and well-being are assessed in a holistic way, considering their preferences and the entire patient journey. From a societal perspective, this care should be accessible to everyone in a timely manner to ensure the greatest benefit for all.
It is true that BEAMER focuses not only on medication but on adherence to treatment. In this context, several challenges stand out: Firstly, there is a remarkable lack of understanding and communication between healthcare professionals and patients, which often leads to misunderstandings and mistrust. This can result in patients not following the treatments or not fully understanding their importance.
In addition, the complexity and duration of some treatments make compliance difficult, especially when side effects are added.
Finally, the fragmentation of many healthcare systems can make patient navigation difficult, leading to missed appointments and inconsistent follow-up. These problems affect not only the efficiency of the delivery of care but also the overall outcomes for patients.
Efficiency is one of the keys to achieving a high-quality healthcare system. In this context, the BEAMER project aims to improve the quality of care by enhancing patient adherence. By analyzing the drivers and consequences of non-adherence to treatment, the BEAMER project has identified a strong link with the efficiency of the healthcare system. For example, a less efficient healthcare system with long waiting times or poor allocation of resources is a common driver of a poorly accessible healthcare system, which often contributes to non-adherence. Additionally, non-adherence to treatment often leads to an overburdening of the system, increasing costs and reducing efficiency. The BEAMER project aims to develop a behavioural model that can contribute to the field of treatment adherence and, as a result, improve the quality of healthcare.
Leveraging the diversity of backgrounds within this consortium offers a unique strength. Physicians provide us with insights from the clinical side and the doctor-patient perspective, while pharmacists contribute knowledge on the therapeutic aspects of adherence and offer an industry perspective. Our social science partners delve into behavioural factors and examine social repercussions. Furthermore, my engineering background provides a systematic approach to problem-solving. At UPM, we contribute to the development of models and technological tools, as well as process improvements that simplify and enhance adherence to treatment. By merging these diverse perspectives and approaches within the BEAMER project, we can design comprehensive strategies that address both the human and technical dimensions of adherence and efficiency challenges.
The BEAMER Project brings together experts from different backgrounds, and this is one of the strengths of our consortium as we can address our research questions with a multidisciplinary approach.
At PredictBy, we focus on social, behavioural, and data sciences, which allows us to contribute to the design of an adherence model that is centred around behavioural factors such as patient acceptance and control. Additionally, one of the areas of expertise of the PredictBy team is studying the impact of digital health innovations from a socioeconomic perspective. To this end, members of the PredictBy team will contribute to the impact assessment of the BEAMER solution at a later stage of the project.
For more information about the BEAMER Project and how you can get involved to support its aim to help improve adherence to treatments, visit our page here!
Feel free to share your thoughts by contacting us
Supported by a grant from IMI, the project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 101034369. This joint undertaking receives support from the European Union’s Horizon 2020 research and innovation programme, the European Federation of Pharmaceutical Industries and Associations [EFPIA] and Link2Trials. The total budget is 11.9 M€ for a project duration of 60 months.
Disclaimer:
Information on this website reflects project owner’s views and neither IMI nor the European Union, EFPIA, or any Associated Partners are responsible for any use that may be made of the information contained therein.
The primary aim of the end user personas is to support the creation of materials to support the implementation of the BEAMER model framework and to help define requirements for the elements of the BEAMER model framework. Hence, healthcare professionals (HCPs) represent the primary envisaged end user group of the BEAMER model framework and the associated Adherence Intelligence Visualisation Platform (AIVP)
It is one learning from the joint design process that the job titles of healthcare professional team members do not necessarily predict the roles they would play within the change management process for implementing BEAMER and installing it as a standard model within healthcare. Additionally, the role and responsibilities of certain job titles, for example nurse, varies across different healthcare systems and would affect how they interact with the BEAMER model outputs and the access they would be permitted and so it would not be helpful to include these job titles: The four personas represent role-independent archetypes within the group of HCPs. They encompass a Managerial HCP Persona, an Implementer HCP Persona, a Support HCP Persona, and a Established HCP Persona.
These healthcare professional personas may be further tailored to specific healthcare settings depending on the needs of the individual pilot sites. Thus, adapted or spin-off versions of these original personas may be considered. The persona displays include a summarising statement, goals, challenges, experience, and needs to enhance the accessibility and usability of the model while minimising user burden.
Patient organisations are considered potential users of the model outputs. Consequently, personas were designed for these groups to assure that the implementation materials may also support their needs in the longer term, thus fostering sustainability of the project outputs.
The identified focus areas within this persona are goals, needs, skills and tools, along with potential challenges anticipated during the implementation process. The persona emphasises awareness-raising, capacity building, education, peer support provision, and the promotion of research and development in therapeutic care.
The patient organisation persona serves as a theoretical framework representing how patient organisations could benefit from and include the BEAMER model framework in their therapy and care related as well as their organisational work. This persona comprises the needs, goals, challenges and necessary tools, facilitating preparation and implementation of the model and optimising the user experience of patient organisations as end users of the BEAMER model framework. It can be used as a guide to identify potential obstacles and understand the prerequisites for a patient organisation to successfully adopt and integrate the BEAMER model framework.
“In implementing the BEAMER model, we want to be able to respond to the different needs of our patients to ensure their adherence, build a supportive community and improve outcomes.”